Editing Human Centered Data Science (Fall 2019)/Schedule (section)

=== Week 5: October 24 ===
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[[:File:HCDS 2019 week 5 slides.pdf|Day 5 slides]]
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;Research ethics for big data: ''privacy, informed consent and user treatment''

;Assignments due
*Reading reflection

;Agenda
* Reading reflection review
* Guest lecture
* A2 retrospective
* Final project deliverables and timeline
* A brief history of research ethics in the United States


;Homework assigned
* Read and reflect: Gray, M. L., & Suri, S. (2019). Ghost Work: How to Stop Silicon Valley from Building a New Global Underclass. Eamon Dolan Books. ([https://canvas.uw.edu/courses/1319253/files/folder/Readings PDF available on Canvas])

;Resources
* National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. [https://www.hhs.gov/ohrp/regulations-and-policy/belmont-report/index.html ''The Belmont Report.''] U.S. Department of Health and Human Services, 1979.
* Bethan Cantrell, Javier Salido, and Mark Van Hollebeke (2016). ''[http://datworkshop.org/papers/dat16-final38.pdf Industry needs to embrace data ethics: Here's how it could be done]''. Workshop on Data and Algorithmic Transparency (DAT'16). http://datworkshop.org/
* Javier Salido (2012). ''[http://download.microsoft.com/download/D/1/F/D1F0DFF5-8BA9-4BDF-8924-7816932F6825/Differential_Privacy_for_Everyone.pdf Differential Privacy for Everyone].'' Microsoft Corporation Whitepaper.
* Markham, Annette and Buchanan, Elizabeth. [https://aoir.org/reports/ethics2.pdf ''Ethical Decision-Making and Internet Researchers.''] Association for Internet Research, 2012.
* Kelley, P. G., Bresee, J., Cranor, L. F., & Reeder, R. W. (2009). ''[http://cups.cs.cmu.edu/soups/2009/proceedings/a4-kelley.pdf A “nutrition label” for privacy.]'' Proceedings of the 5th Symposium on Usable Privacy and Security - SOUPS ’09, 1990, 1. https://doi.org/10.1145/1572532.1572538
* Warncke-Wang, M., Cosley, D., & Riedl, J. (2013). ''[https://opensym.org/wsos2013/proceedings/p0202-warncke.pdf Tell me more: An actionable quality model for wikipedia].'' Proceedings of the 9th International Symposium on Open Collaboration, WikiSym + OpenSym 2013. https://doi.org/10.1145/2491055.2491063
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* Hill, Kashmir. [https://www.forbes.com/sites/kashmirhill/2014/06/28/facebook-manipulated-689003-users-emotions-for-science/#6a01653e197c ''Facebook Manipulated 689,003 Users' Emotions For Science.''] Forbes, 2014.
* Adam D. I. Kramer, Jamie E. Guillory, and Jeffrey T. Hancock [http://www.pnas.org/content/111/24/8788.full ''Experimental evidence of massive-scale emotional contagion through social networks.''] PNAS 2014 111 (24) 8788-8790; published ahead of print June 2, 2014.
* Barbaro, Michael and Zeller, Tom. [http://query.nytimes.com/gst/abstract.html?res=9E0CE3DD1F3FF93AA3575BC0A9609C8B63&legacy=true ''A Face Is Exposed for AOL Searcher No. 4417749.''] New York Times, 2008.
* Zetter, Kim. [https://www.wired.com/2012/06/wmw-arvind-narayanan/ ''Arvind Narayanan Isn’t Anonymous, and Neither Are You.''] WIRED, 2012.
* Gray, Mary. [http://culturedigitally.org/2014/07/when-science-customer-service-and-human-subjects-research-collide-now-what/ ''When Science, Customer Service, and Human Subjects Research Collide. Now What?''] Culture Digitally, 2014.
* Dwork, Cynthia. [https://www.microsoft.com/en-us/research/wp-content/uploads/2008/04/dwork_tamc.pdf ''Differential Privacy: A survey of results'']. Theory and Applications of Models of Computation , 2008.
* Hsu, Danny. [http://blog.datasift.com/2015/04/09/techniques-to-anonymize-human-data/ ''Techniques to Anonymize Human Data.''] Data Sift, 2015.
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